We Need Your Help
Posted by: Lisa on: December 12, 2010
From FORCE (Facing Our Risk of Cancer Empowered)…please read.
“Please raise awareness about an upcoming FDA decision that will affect thousands of metastatic breast cancer survivors. Avastin is an anticancer medication that many metastatic breast cancer patients respond to. As we move towards personalized medicine, we need better ways to evaluate who will and will not respond to a medication and assure that those medications that benefit subsets of the population remain available. We support Komen for the Cure and the Ovarian Cancer National Alliance’s statement about this topic: http://ww5.komen.org/KomenNewsArticle.aspx?id=6442452367. The FDA decision on the drug Avastin is scheduled to occur on December 16.
Please sign the petition by a woman for whom Avastin is the only drug benefitting her: http://www.thepetitionsite.com/3/stop-the-fda-from-disproving-avastin-to-treat-metastatic-breast-cancer
Write a letter/e-mail to the senior leaders at the FDA (Margaret Hamburg, margaret.hamburg@fda.hhs.gov; Patricia Keegan, patricia.keegan@fda.hhs.gov; Richard Pazdur, richard.pazdur@fda.hhs.gov; Janet Woodcock, janet.woodcock@fda.hhs.gov) and also send a copy of that letter to your congressman and senator. The mailing address for the FDA is 10903 New Hampshire Ave, Silver Spring, MD 20993-0002.
We need more choices in treatment not less.”
3 Responses to "We Need Your Help"
March 24, 2012 at 7:15 pm
Hi Lisa,
This is a research exercise for a better understanding what interventions and strategies we might implement to support issues regarding genetic mutations.
To do the exercise, please visit http://viewsofbrca.blogspot.com/
We are a group of graduate students from Parsons the New School for Design. We have created this platform around three viewpoints: the future, the present and the past. Follow the instructions below and help our research by commenting/sharing your thoughts and experience. The exercise takes about 10-20 minutes.
Could you help us to spread this exercise out?
Thanks,
Nelson + Team
Transdisciplinay Design MFA
School of Design Strategy, Parsons
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BRCA Sisterhood Reconstruction Photos
The BRCA Sisterhood has created a website of different types of reconstruction photos. Women from around the world have kindly shared their surgery photos in the hopes that it helps other women.
July 19, 2011 at 2:50 pm
Wanted to share this article that does a good job of outlining breast cancer & BRCA1 gene I wanted to show you.
http://www.dailyrx.com/videos/understanding-breast-cancer.html